Clinical Trials

2 studies in Dystonia

1. Dystonia Coalition Projects Scottsdale and Phoenix, AZ View Summary
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   Dystonia Coalition Projects

   Location:

   Scottsdale and Phoenix, AZ

   Trial status:

   Open for Enrollment

   Why is this study being done?

   This collaborative, international effort has two primary goals. The first is to create a biospecimen repository and associated clinical database to be used as a resource for dystonia and related disease research. The second goal is to create and validate various rating scales for focal dystonias to be used during a typical clinical examination. Across sites, the investigators hope to enroll at least 5,000 adult patients. Subjects of this study will be asked to complete a neurological exam which will be videotaped, complete some questionnaires, and donate a blood sample. Subjects with laryngeal dystonia and voice disorders will also be asked to have a transnasal laryngoscopy (an exam of the voice box) where the subject has a flexible tube passed through their nose and into the throat to view the throat and voice box. A study visit will take between 45 minutes and 4 hours depending upon which portions of the study a subject completes. A subset of subjects will be asked to return annually for a one hour visit.

   NCT ID:

   NCT01373424

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   Who can I contact for additional information about this study?

   
   Scottsdale: Amy Duffy 480-301-4750
                       
   
   

2. Neurotransmitter Measurements Using Wireless Instantaneous Neurotransmitter Concentration System (WINCS) During Deep Brain Stimulation Neurosurgery Rochester, MN View Summary
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   Neurotransmitter Measurements Using Wireless Instantaneous Neurotransmitter Concentration System (WINCS) During Deep Brain Stimulation Neurosurgery

   Location:

   Rochester, MN

   Trial status:

   Open for Enrollment

   Why is this study being done?

   In this study, the investigators will monitor extracellular neurotransmitter levels using a probe that is able to perform real time electrochemical detection during deep brain stimulation surgery. The overall question this study is designed to answer is: Are there neurotransmitters released during deep brain stimulation?

   NCT ID:

   NCT01705301

   IRB Number:

   09-007441

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   Who can I contact for additional information about this study?

   Rochester: Debra Gorman, RN 507-266-3044